Neurologist Appt. And Get to Know FTD

Today Craig and I went to the Neurologist. It was the first time I had accompanied him to the Neurologist. I didn't learn much new because I have worked very hard to become very well informed about FTD and to have a good understanding of how the dementia will affect Craig and his actions. I also learned that we will not loose my dad as soon as we thought so yippee! But it did make me realize I have not shared very much information about what FTD is. In the next few days I plan on introducing FTD, FTD research and unveiling resources for families.

This was my first resource I looked at when my dad was diagnosed and it has helped me greatly. 

Frontal Temporal General Information

If you are unable to get the link to work please go to: 

http://www.alz.org/dementia/fronto-temporal-dementia-ftd-symptoms.asp

Emily

New Year Update

Happy New Year!

It’s been a long time since I have posted in this blog and some very big changes have occurred. On Christmas Eve all of our issues with giving my dad adequate and medically competent care came crashing to an end when my Grandfather passed away. See, he had durable power of attorney documents and the only way us kids were going to be able to get power over my dad’s medical care was with guardianship. Now my grandfather was not the best person around, he had a history of abuse. He also was down right in denial about my father’s diagnosis and what it meant for a long term prognosis. His death came as a relief to my siblings and I, and thankfully we will no longer have to go through such difficult family situations in order to help my father in the necessary way.
Some other very big changes are that I have been working with the county dementia care specialist to bring awareness to that young people can get dementia. Many doctors fail to realize that memory loss is abnormal at any age and that is one of the issues we are working on. To bring awareness to that young people suffer from dementia my father and I will be doing a news interview with a big metropolitan news station and will also be being part of the Hudson Hot Air Fair! We will be going up in a balloon to educate people about dementia!
I feel very happy with how our lives are going, but I still realize that there is much work to be done, both with helping my father, and with education of the public