Today Craig and I went to the Neurologist. It was the first time I had accompanied him to the Neurologist. I didn't learn much new because I have worked very hard to become very well informed about FTD and to have a good understanding of how the dementia will affect Craig and his actions. I also learned that we will not loose my dad as soon as we thought so yippee! But it did make me realize I have not shared very much information about what FTD is. In the next few days I plan on introducing FTD, FTD research and unveiling resources for families.
This was my first resource I looked at when my dad was diagnosed and it has helped me greatly.
If you are unable to get the link to work please go to:
http://www.alz.org/dementia/fronto-temporal-dementia-ftd-symptoms.asp
Emily
Emily, I'm so sorry for what you are going through. My dad was diagnosed with FTD 6 years ago and I have been his caretaker and now he lives in a Memory Care facility. We had to move him here from Chicago years ago because of the disease. I wish you all the patience and compassion you can have in an impossible situation.
ReplyDeleteAmy, Thank you for your compassion. I am sorry to hear you are also dealing with this horrible disease in a parent. I would love to have other care takers follow my blog and post frequently about what works for them, and if they ever need advice or support to use it as a place to ask for help.
DeleteI am a caregiver in Polk County. I am hoping that this training will extend to the other counties in the surrounding areas. I wish you and your family the very best. I look forward to follow you on your journey. As a caregiver of other Alzheimers/Dementia/Parkinsons patients, the level of complexity is so different from one to another.
ReplyDeleteHugs to you!!
I would like to thank you for your introduction and welcome you to the blog.
DeleteI will check with Nancy to find out who you can contact to get training. The ADRC of Wisconsin is wonderful.
I talked to Nancy tonight and she said Polk County does not have a dementia care specialist but St. Croix County does the trainings for Polk County at the Service Center in New Richmond.
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